Local family encourages support for upcoming Angelman Walk

May 13, 2014 9:30 PM

A Chico woman who's daughter has a rare genetic disorder called "Angelman Syndrome" is working to raise money for a national non-profit group that provides support services for individuals and families, and promotes research and awareness.
Maria Sayre who's daughter Amanda has the disorder, says children with it are often misdiagnosed or endure long diagnosis periods because of the lack of awareness.
She and other supporters are taking part in the "Angelman Syndrome National Walk". It takes place on Saturday May 17th at William Land Park in Sacramento. The event runs from 10 a.m. until Noon.
Sayre is hoping to raise at least $500 and asks that people visit www.angelman.org, click on "walk", and under "fundraiser Search" enter Amanda's Angels to donate.
For more information listen to the link to Tuesday's interview with Sayre on Action News Now at Noon. You can also call (530) 624-3505. ###


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