" She has monitors all over her, just to see all those numbers and her respiratory numbers going up it's scary, you don't want your baby to go through all that". It's been an emotional roller-coaster for Lorena Sandoval and Gustavo Perez after their twin girls were born more than a month premature last September. But nothing prepared them for the news that one of the girls was born with a heart defect. " You never want to go through that, it's scary you know. And when you hear heart, a lot of things are going through your head", said Sandoval.
Baby Kamila was diagnosed with VSD, or a Ventricular Septal Defect. She has two holes between her two heart chambers that need to be repaired. The six hour open heart surgery is scheduled for January 23rd at the Sutter Memorial Hospital in Sacramento where she's been living since she was born. " The 6 hours are going to be the longest 6 hours of my life", said Sandoval.
But the struggle to get young Kamila healthy is more than just emotionally draining, it's also expensive. Between the multiple trips per week to Sacramento, and taking time off from work, the family is struggling. " It's been hard you know, especially during these times", Sandoval said.
The family is receiving some financial support from the American Heart Association. If all goes well, Kamila should be able to come home seven to 10 weeks after her surgery. " I just want her to be a normal little girl after all this is done", explained Sandoval.
An account has been set up at Rabobank under the Kamila Marie Sandoval Benefit Fund if you would like to donate to help Kamila.